Wednesday, January 9, 2008

Board Members Of Breathe of Hope

If your a board member in the Breathe of Hope, your President(Elizabeth Doyle Propst) has opened you and your family open to personal liability and litigation. Read her writings and think about that! If your Elizabeth Doyle Propst's employer...she has opened you up to extensive litigation while possibly working for Breathe of Hope while on your company time and dime.

Even Blogs are open to extensive "libel" suits. Distance yourself. Mrs Propst is a loose cannon who will bring harm to your financial well being. Ask yourself is that why you joined an orginization? Are you prepared to lose it all. Read her Blogs..Freedom of Speech has its limitations...is that the writings of a "Childrens Charity" President?...She's an embarrasment.

If your a board member Id be nervous.


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147 comments:

humpty dumpty said...

very well said. There is extensive evidence of her using her computer at work for YEARS to stalk 'other sites'.
Keep this up! She has hurt so many moms ....Good for you whoever this is!!!

jennifer said...

elizabeth IS a loser. her blog is full of accusations that attack dawns personal life...because elizabeth has no life.
Elizabeth says that dawn is going to steal elizabeths son? That's insane! Who IN THEIR RIGHT MIND thinks of these things????
Noone! Only Crazy people!
Maybe if Dawn took possesion of Elizabeths son , at least dawn would actually spend time with poor noah!
How can elizabeth spend "quality" time with her own child, even after she messed up Rachel(!!!!!)if she is on the computer stalking cherubs( after being banned 3 times(hint hint)(um...if you hate it that much you should leave)and setting up nonsense sites

Ding Dong...elizabeth, the men in the white coats are calling for you!!!

jeanie said...
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Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

For the record, neither I or CHERUBS have anything to do with this blog nor do we condone trashing people, calling names, mudslinging or anonymously posting. I didn't condone it when Jessica did it to Elizabeth or other people posted blogs about her and I don't condone this either. And I surely do not condone Elizabeth's blog or false mudslinging either. Nor do I have any clue who created this blog and will swear to this in a court of law.

Jennifer said...
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Mary said...

I am a CDH parent and I have been keeping up with the Cherubs time list and Elizabeth's blog and I think it is all disgusting. It is equally insane to criticize Dawn at Cherubs for telling us what is going on. I do not see any posts there that attack Elizabeth. All the attacking is on Elizabeth's blog and how she can post that it is not personal after all the things she has done to Cherubs is just baffling. I am grateful for the time list otherwise I would not have known what type of a person is heading Breath of Hope and I want my son's memory to have nothing to do with an organization or a person like that. I think those of you who post on Elizabeth's blog and here need to put the blame where it lies and stop encouraging her behavior. I applaud Dawn and Cherubs for retaining class in the face of this insanity.

Mary

nicole said...

AMEN!!!!!!!!! ELIZABETH DOYLE PROPST IS CRAZY!!!!! NO ONE BUT A CRAZY PERSON WHO IS OBSESSED AND JEALOUS WOULD SAY THE CRAZY STUFF THAT SHE SAYS!!! AND SHE MUST THINK ALL CDH PARENTS ARE STUPID TO BELIEVE HER LIES AND NOT THE EVIDENCE!!!! SHE HAS HURT MORE CDH PARENTS THAN ANYONE ELSE HAS SINCE CDH ITSELF. I KNOW OF AT LEAST 50 FAMILIES SHE HAS HURT. WE ALL TALK. WE ALL KNOW SHES FULL OF SHIT AND THE ONLY REASON MOST OF US STAY AT BREATH OF HOPE IS FOR THE AWARENESS DAY BUT IT MAKES US ALL SICK SHE CLAIMS AWARENESS AS HERS WHEN WE ARE DOING ALL THE WORK AND CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS BELONGS TO THE CDH FAMILIES!!!!! WE ARE WORKING. CHERUBS IS WORKING. IT SEEMS THE ONLY PERSON WHO HASN'T DONE ONE GODDAMN THING FOR CDH AND WHO DOESN'T KNOW WHAT THE MISSION IS IS ELIZABETH!!!!! SHE ACTS LIKE SHE KNOWS EVERYTHING AND SHE IS THE MOST IGNORANT BACKWARDS MOUNTAIN REDNECK I HAVE EVER MET!! SHE IS MENTAL!!!!! SHE ACTS LIKE CECILIA IS STILL ALIVE!!!!! SHE MUST BE ROLLING OVER IN HER GRAVE ABOUT ALL THE STUFF ELIZABETH IS DOING TO GRIEVING FAMILIES!!!! ELIZABETH KNOWS NOTHING ABOUT CDH THAT SHE DIDNT STEAL FROM OTHERS!!!! HER BLOG IS SO FUNNY AND SHE DOESN'T EVEN KNOW WE ARE ALL READING IT AND LAUGHING AT HOW STUPID SHE IS!!!!!!

Caireen said...

Muddslinging started with Ms. Torrence. And you all here are idiots. And Ms. Torrence under oath? I heard the transcripts there was no purgery proven except your own. Hire a Civil Attorney who can LITIGATE - you will need it.

Oh and the Awareness Day belongs to the states - the organization was just the TOOL that put it out there - brilliant idea wasn't it?

jeanie said...

Hello all,
I have read all of these messages, pretty cruel, to attack Elizabeth about Cecilia, she lost her daughter to this horrible birth defect. Elizabeth has been nothing but incredible and kind to me & my son Ryan who is now 20 and a sophomore in college. He had CDH & ECMO in 1987. I got through all of Ryan's ups & downs without any support from all of you. My family was my support. I have been to hell & back with Ryan, RSV, Scoliosis, Seizures. He is a great young man. I hope that all of you never have to go through this hell. Let's get back to why we are here, there is no prize, it is all about helping eachother, right?
Thanks for listening and prayers for all of these babies and toddlers!
Jeanie,
Mom to Ryan, CDH & ECMO 1987, now a college sophomore!

nicole said...

DO YOU REALLY BELIEVE CECILIA IS PROUD OF HER MOTHERS ACTIONS????? BUT IT WAS PERFECTLY OK FOR ELIZABETH TO SAY THAT DAWNS SON WAS BETTER OFF DEAD AND SHE DIDNT DESERVE TO HAVE MORE CHILDREN?????? WHAT TYPE OF CRAZY BITCH SAYS SOMETHING LIKE THAT????? AND THAT WAS JUST ONE OF THE HORRIBLE THINGS SHE SAID!!!!! DID YOU SAY ANYTHING TO ELIZABETH OR ARE YOU JUST CHEERING HER ON WHILE SHE HURTS OTHERS????? THIS IS WHY SHE CONTINUES TO HURT FAMILIES!!!! ELIZABETH CALLS ALL OF US IDIOTS BUT WE ALL KNOW WHO CAIREEN IS!!!!!!!!!!!!!!!!

^Angel^Bennett-Chadlen's mum said...
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^Angel^Bennett-Chadlen's mum said...

I agree with everything that Jeanie just said.

The comment about Cecilia was a pretty low blow. I wouldn't say such a thing to my worst enemy. That is disgusting.

As for the Board Members losing everything?? Ha.....I have nothing to lose.....and fear nothing. I haven't done a damn thing to anyone and no one can prove otherwise.

Who has all the money to go so deep into litigation?? Why not just agree to disagree here and DO NOT MENTION ANYONE'S ANGEL here again!!!!

Shame on you all.

Life is short....focus on your children and show some grace for goodness sakes!

Spread awareness for ALL.....this is NOT about one group or another as far as I am concerned.

Let's just work together for our children.....it's all in my angel's name and for children like him...and children like yours. Does it really matter who is doing what?? Let's all just do something for cdh.

Love, hugs, and Nimkee Blessings to all,
Melissa--Angel Bennett-Chadlen's proud mom
http://livingwithtrisomy13.org/memoriesofbennett.htm

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Stacy said...

Oh man....like everyone knows that E uses Capitals to FORCE a word...Elizabeth we know you are Caireen. Post your real name

Mudslinging did not start with Dawn, Elizabeth. It started w/ you ~100% with you! You began this because you insisted dawn torrence was stealing money from cherubs.

AWARENESS?? What awareness have YOU personally brought to the cdh world?
Nothing!
All your members are getting the dates. You aren't doing jack to raise awareness. You picked a date. That's it!
BRILLIANT? Not really because you aren't DOING anything.
You got a "walk" scheduled? No!
You got a "ball" scheduled? NO!
You got a member running a poker thing for you! You aren't doing anything!
You are sitting on your ass, stalking cherubs, stalking dawn, stalking dawn's work, her boyfriend and craigslist...you bring nothing to the table of CDH!


BOH MEMBERS...google elizabeth name. You will find post after post of elizabeth STATING boh is ENTIRELY( yes, complete with capitals!) hers. She claims NOTHING from all you members of boh who think you 'share' boh..
Dawn Torrence gives credit to each member for making cherubs.
Elizabeth you are a power hungry loonie bird.

And whoever said that people want nothing to do with either group, you're wrong.
People are seeking support at cherubs.
We have dozens of boh members :-)

Mary said...

I have read all of the back-and-forth. It's just sad. I think there are situations where both ladies have done/said things that in hindsight might have not been great ideas. But we can't undo what has already been done. I have no doubt that both of you (Dawn and Elizabeth) are dedicated to helping CDH families. And NO ONE deserves to have their CDH child (or their memory) disrespected. To everyone - regardless of what you feel about their mother, please don't disrepect the child or his/her memory.

I think this is a perfect example of actions speaking louder than words. If either of you are SERIOUS about stopping this insanity, then stop taking action against one another! Dawn - stop posting about it every time you have something to add to your Elizabeth timeline on the Cherubs boards. If people want to check the timeline, they can do it without anyone else's prompting. Elizabeth - stop filing claims/instigating investigations/causing problems for Dawn and/or Cherubs with CafePress, Yahoo, Wikipedia, the IRS, etc.. Just STOP!!!!

ACTIONS SPEAK LOUDER THAN WORDS

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Jennifer said...
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nicole said...

HOW IS IT GOSSIPING IF WE ALL ARE READING IT????? GREAT VERSES BUT YOU ARE A HYPOCRITE FOR POSTING THEM AFTER WHAT YOU POSTED ALREADY!!!!!! IS THIS THE SAME JENNIFER THATS ON THE TIME LIST BASHING CHERUBS ON ELIZABETHS BLOG????? YOU WANT TO BASH SOMEONE AND THEN SAY CANT WE ALL GET ALONG LIKE YOURE A SAINT???? DOESN'T YOUR BIBLE TELL YOU THAT GOD HATES HYPOCRISSY???? MAN ALL IM SAYING IS AT LEAST BE HONEST AND NOT TWOFACED!!!! ELIZABETH SCREWED UP BIG TIME AND DAWN IS RIGHT. THE LEAST ELIZABETH SHOULD DO IS APOLOGISE!!!! SOME OF YOU SCREWED UP JUMPING IN BASHING DAWN AND CHERUBS WITHOUT KNOWING WHAT THE HELL YOU ARE TALKING ABOUT AND DEFENDING A CRAZY STALKER. THIS ISNT HIGH SCHOOL!!!! DONT GO PUTTING ON HALOES NOW ACTING LIKE YOU DID NOTHING WRONG!!!! MAN IN MY OPINION STACY AND BOHS DIRECTORS ARE JUST AS BAD AS ELIZABETH. I CANT TELL IF NONE OF YOU HAVE ANY CONCIENSES OR YOUR ALL CHICKEN SHITS FOR NOT STANDING UP TO ELIZABETH WHEN ALL THIS MESS STARTED!!!!! DIDNT YOU PEOPLE READ THE EVIDENCE????? DIDNT YOU LISTEN TO THE AUDIO???? YOU ARE ALL JUST MEAN TO SAY THAT I SAID SOMETHING BAD ABOUT ELIZABETHS KID!!!!! I DIDNT SAY ANYTHING BAD!!!!!!! I WAS JUST BEING HONEST AND SAYING WHAT EVERYONE ELSE HAS BEEN THINKING FOR MONTHS!!!!!!!

Jennifer said...

You know I am not going to take part in this nonsense any longer. I know what I have or haven't done and God knows that too and that is all that matters!

I am going to go on planning my CDH Awareness Event and raise awareness to a medical condition that my son was born with. My event and awareness is going to be focused on my son and on showing how blessed God has blessed me.

The money that I have/will raise will be given to whatever organization God wants me to give it to. Because the money that I raise is for me to give as I see fit. There is NO contractual obligation that I HAVE to give it to BoH. Elizabeth has NOT demanded or stated that we have to give BoH the money. In fact, I am giving half of the money raised to another organization, not connected to BoH.

So, with that said, I am moving forward on spreading awareness for CDH, something that we are all suppose to be doing. I am no longer going to be consumed by the drama that is going on. I don't have time for it nor do I care to be involved in it any longer.

God Bless!

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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H said...
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lise said...

To "H"
hindsight is 20-20.Noone believes it until they have been thru the wrath .

"Nicole"...I get your anger. I really do. It's horrible to know that our childrens memory was being trampled on so Elizabeth can prove to the world that she OWNS cdh.
I can say with certainty that Elizabeth told me and another member the ONLY reason she was starting boh was to blow cherubs off the internet.
I did not believe it then.
I do now.That has nothing to do with CDH awareness.
Noone owns cdh ...our children do.Certainly not a 'dictator' like Elizabeth (a claim she made to me)

"H"~ I really am sorry you were hurt. It's that hurt we tried hard to warn people about. Numberous times I felt as tho Grace's memory was dragged thru the mud. It's a terrible feeling and ,believe me, you lose trust with who you share your child with

Heidi said...
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Heidi said...
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H said...
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Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Heidi said...
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Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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momof3 said...

Several of us wanted to ask these questions but there is no other place to post anonymously so we don't get "accidentally" kicked off BOH.

Will Breath of Hope take a poll to see how many members want to trademark Congenital Diaphragmatic Hernia Awareness? Do we get a say so?

Each time Elizabeth posts Congenital Diaphragmatic Hernia Awareness TM it just reinforces the fact that all she cares about is owning C.D.H. and trying to hurt Cherubs while using our work to do it. It makes us all sick that her motives are so deceitful and cruel.

These are our children. This is our work contacting governors. These are our experiences. Elizabeth has done nothing for awareness but take advantage of others. Virginia isn't on the list of states and she is planning nothing herself. She is still using us and our babies every time she says she owns Congenital Diaphragmatic Hernia Awareness.

Please start editing the thoughts and prayers lists instead of the same things over to make it look like more is done than actually is. There are members still on that list that have been kicked out weeks or months ago.

For the love of Jesus please stop with the "Lung Function Chants". It is ridiculous and not true and misleading to new parents and we are all sick of hearing it.

How is BOH "Support all - search for a cure" when BOH does not support all C.D.H. parents. It supports C.D.H. parents that agree with Elizabeth or who do not speak out against her. Many of our friends were "accidentally" removed for disagreeing with Elizabeth and we have been forced to find other ways to stay in touch.

How does BOH search for a cure when C.D.H. is not a disease?

For the record even though no one will say anything publicly we all know about the time-line at Cherubs and the blog she wrote about Dawn and we are all disgusted. None of us believe Elizabeth or condone her behavior nor will we forgive and forget what she has done to our friends at both groups.

Integrity is doing what you say and saying what you do, when it is good and right. Isn't it about time that the integrity Elizabeth keeps preaching to us about is actually good and right and honest?

Signed a dozen Breath of Hope members who are fed up and want to see a real organization with a real leader.

momof3 said...

I have been reminded that I forgot 2 additional questions that everyone wanted to ask. Why are all new members moderated? Why is there not freedom of speech at BOH?

The only possible reason to moderate new members of a support group where everyone who joins is filtered is that there is fear someone will say something bad about Elizabeth. No one in a support group should have to earn her trust before they are allowed to speak freely. Is BOH about C.D.H. or is it about Elizabeth?

Where did the turquoise ribbon come from? A lot of us prefer the ribbon that Cherubs uses. We would have liked to have had the opportunity to vote as well.

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Shanell Browand said...

I left Breath of Hope a couple of weeks ago and asked them to delete all information, pictures and videos belonging to me off of the Yahoo! group and myspace. Please get everything off!

Shanell

Southern Girl Rambles said...

I wanted to post this here since Elizabeth deleted my post on the listserv before it made it out to the members. I have left Breath of Hope.

It is a REAL shame that there is not a CDH Support group that is TRULY a support group!!! It is a REAL shame that the two organizations that do exist are only in it to be controlling and to worry about what the other group is doing.

If you do not agree with either of them, then they will either kick you out (which Dawn did) OR sabotage your CDH awareness event by talking a HUGE company out of contributing to the event and keeping a gift card that was sent by another HUGE company for the purchase of items for this event because you didn't agree with her (which Elizabeth did).

This attitude of if you don't do what I say or do what I want you to do then I am going to take my toys and leave the sandbox is very immature. It is also VERY unprofessional!! How unprofessional is it to call a huge company and tell them not to give money to an event that is not only going to benefit the only Children's Hospital that treats CDH babies in the area; but also, your organization as well!!

The very unfortunate thing is that with this attitude there are SO many families that are not getting educated and informed about CDH.

It is a shame that the mission of these two organizations are obviously not the real mission. If it was, then there would be only one group and we would all be working together to spread awareness.

Just think how many families are not getting the information that they need to make the decisions that they need to because of all the immaturity amongst these groups. Some families may be forced to make decisions that they wouldn't normally make because they were not educated about the true facts about CDH.

I am going to have my awareness rally and it is going to be HUGE!! I am going to raise THOUSANDS of dollars that is going to go to the NICU at my local Children's hospital.

Jennifer
Caden, LCDH 6-1-05
Logan 8-3-03

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Shanell Browand said...

Dawn is right! I left Breath of Hope because of drama and I know that Cherubs is not going to allow the drama from Breath of Hope to come over to Cherubs. Exactly please keep the drama out of Cherubs. Thats the last thing we all need. Plus, Elizabeth is not deleting my photos and bulletines off of Yahoo, which is not right. Plus, she needs to stop trying to see if I am saying anything bad about BoH. I dont want anything to do with BoH. I am completely done with them, so dont bring the drama here!

Southern Girl Rambles said...
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Shanell Browand said...

Then why did you add me to myspace? To try and see if I was saying anything bad about BoH. well, I didnt. Thats not how I role. I have better class than that

Shanell Browand said...

you went against the vollenteer rules. Thats not CHERUBS kicking you out, it was your own actions. You read and signed the papers, therefore you are informed by what you are signing and stating that you will follow these rules. Dont blame Dawn for it, you brought it among yourself.

Southern Girl Rambles said...

I could careless what you say about them. And if you want to delete me as a friend, go ahead!

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Shanell Browand said...

thanks dawn :)

Julia's Mommy said...

Neither group is completely innocent here. BOTH groups are doing things to keep this drama going! I can't stomach it anymore! In the name of CDH please stop!!!

Heidi Carlson

Shanell Browand said...

well maybe BoH needs to stop tracking me and we will be all good. I have a program on my computer and I can tell who goes onto my sites and trys to see what I am doing!! I am not stupid!!

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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Shanell Browand said...

I have seen many people leave BoH because of Drama, and they are scared to come to CHERUBS because they dont want more drama. Elizabeth, and the board members is trying to move their drama, their problems, towards CHERUBS, nots just not fair. We at CHERUBS are trying our hardest to keep it drama free. When I was in BoH, I felt like I was in highschool again, certain people would talk to certain people and Elizabeth reminds me of the snotty cheerleader who likes to bad mouth everybody. It makes me feel like the drama in Breath of Hope is causing their members, that leave, to believe that all CDH groups are like that. It isnt. At cherubs, we talk, have fun, we dont gossip about stupid stuff about a group that we could care less of. We are postin this because we are sick and tired of Breath of Hope tryin turn all their drama towards us. Why dont we just leave it alone! Breath of HOpe just needs to knock it off, stop trying to track me, stop trying to blame everything on us! We're minding our own business.

ITS NOT US, ITS BREATH OF HOPE!!!!they are having their members think that all groups are full of drama, and like me, they dont feel like they belong!! IT NEEDS TO STOP!!!! Cherubs is not ruining the name of CDH groups, I believe its Breath of Hope.

If Breath of Hope keeps the highschool drama going, I KNOW that eventually, the charity will be ran into the ground. I know parents from BoH that tell me that they dont feel accepted and that THEY want to leave because of the drama.
I finally had to block Elizabeth from my email cause she was saying" your so immature" and when I asked her to take my pictures off of the Yahoo group, she was all defensive and said " how do you know if your pictures are still on here. Your not in the group. Its none of your business". well, I still have friends in BoH. I put Elizabeth in my spam list cause she wouldnt stop emailing me! Problem solved

Darlene said...

I have been a member of Cherubs for 10 years and I will vouch for Dawn's intentions and character. Dawn is a kind and giving person whose only purpose in starting Cherubs was to help other families. She doesn't deserve the scrutiny and attacks and she has every right to defend herself personally and to defend her organization that she has dedicated herself to. I applaud Dawn for standing up for herself and for hanging in there. How about all you others out there who have benefited and appreciate Dawn and Cherubs? Let's hear from you.
Thank you.
Darlene

H said...
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L said...

to H....
I guess I missed that. What was it about??

H said...
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Shanell Browand said...

I think that BoH is being retarded, seriously. They're acting like they own today. "ITS CDH AWARENESS DAY, but if Cherubs does anything on this day, its not cool" GROW UP!!!! Everyday should be CDH Awareness day, and if anyone does anything today for CDH Awareness that isnt in BoH, dont have a frickn fit like a 5 year old. I have seen already enough drama today than i ever want to see in my life. Its just so retarded how some BoH members are getting pissed that members from Cherubs is posting stuff for March 31st CDH Awareness. GROW UP!!!

L said...

Shanell,
How old are you?? 5?? "Retarded" that sounds like something my 3rd grader would say. Instead of telling BoH to grow up, I think you need to look in the mirror!

Educated CDH Mom

Shanell Browand said...

Well, younger and smarter than you obviously, if you're still in that group! I am 18! Its true! They need to grow up! For God Sake, Dawn was more supporting to me then miss bitchy pants was ever, and I did a lot for that group! Dawn was there supporting me, when Elizabeth had her click going on. Why dont you go and get your granny panties and just leave me alone! I am stating my opinion, so dont you come and try to make it personal. I am stating me opinion, and many people can agree with me, BoH needs to grow up! I have had 4 of my friends from BoH LEAVE because the way you guys are. Like I said, take your GRANNY PANTIES and just let people state their opinion, like me.

Oh, and BoH better delete the rest of pictures, i know that some are still on there.

Shanell Browand said...

Oh, and I am a mom to a CDH Baby. So I know a lot about it. Dont think that I am someone who doesnt know anything about CDH

Aydas Mommy

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

Oh for Pete's sake, are you grown women or not? "L", at least have enough nerve to sign your name, Elizabeth. "H" back your words up with a name too. momof3, humpty, and all the other anonymous posts... sheesh... this is not Jr High. Besides, what have your anonymous posts accomplished anyway? Did Elizabeth answer any of your questions, momof3? I doubt it and definitely not answered in a public arena where lies would be caught and called out. Heidi, bless your heart, you got really burned by posting your opinion but I have so much respect for you for signing your name! Shanell, as much as I'm LMAO at the granny panties comment... it's not worth rolling in the mud.

Now, really, Elizabeth take Shanell's photos down and stop calling her immature. She may be young enough to be your granddaughter but she's more mature than most and she's had the guts to sign her name.

Everyone get back to focusing on CDH. Congrats to the 5 or 6 BoH members who held events or fundraisers!!!! That's WONDERFUL that you raised awareness for CDH!!!! Sounds like it was very profitable for BoH too... as Terri put it *cha-ching* for BoH with CDH Awareness Day. I know lots and lots of CHERUBS members too worked very hard yesterday on CDH AWARENESS for CDH Awareness Day and there were 1000's of people on MySpace and Facebook sporting CDH Awareness Ribbons. It's great that so many CDH parents worked together!

Darlene, thank you for that really sweet post and thank you to those of you who e-mailed. CHERUBS has such wonderful members!!! :)

Now, maybe stop doing google searches to try to find out what CHERUBS is doing and stalking us and maybe start focusing on CDH Awareness Day next year and get more states like Virginia to participate or plan an event and stop harassing the new moms like Shanell please? That's the whole outcry about "not exposing parents to drama" when you're attacking them and all we're doing is stating the truth about your actions? Baffling. By the way, telling Shanell and other new and expectant moms that CHERUBS site is depressing or that we have autopsy photos up everywhere and that they should stay away from it... come on... that is wrong on so many levels. No one at CHERUBS has ever told anyone to stay away from BoH's black site. Just like we don't say things like Elizabeth steals from BoH or is all about money etc to try to get parents to not donate to BoH. Never, not once.

It's called maturity.

And all this said without any personal attacks or namecalling or slander.

Again, it's called maturity.

Educated, Honest and Compassionate CDH mom,
Dawn

H said...
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Shanell Browand said...

H.... thank you so much, i really appreciate it.

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

Who is Holly Centurino and what the heck is she talking about?

L said...

This is not Elizabeth. I am a member of BOTH groups!! I just think that BOTH groups are loosing focus, which is why I am not active on either board!

Carole said...

Even though I promised myself I would not enter into the muck and mire...I need to set the record straight.

I am on no one's side.

I was not in a support group through my pregnancy with Joseph...his birth...death and my early grieving days.

That is what I have gone back to. I am a member of no support group.

I did nothing to hurt BOH while I was there...and anyone that believes otherwise does not know me or the intentions of my heart.

The day I left BOH was not a calcualated leaving...but rather a series of blunders caused by the child proof software on my computer that makes it so I couldn't sign into Yahoo and leave when I wanted to. It was my first opportunity.

I resent things being posted about me that aren't true.
~Carole

Shanell Browand said...

well then, "L", why dont you just stay out of it since you're not active in either board, it reduces the stress on us

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

At 9:14 this morning from her work computer at PRA International, Elizabeth Doyle-Propst searched for and found a craigslist ad that CHERUBS had posted for volunteers and services for our fundraisers. She reported it and had it deleted (anyone can delete ads on craigslist). A children's charity fundraiser post.

What was the purpose of this other than to stalk and try to hurt CHERUBS and in turn, hurt CDH families?

Carole said...
This comment has been removed by the author.
Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

The other blog was being productive and things were getting aired and worked out - but Elizabeth and Stacy didn't show up to try to work out things among the groups and put an end to the drama. Instead, they sent threatening and harassing e-mails to Carole until she removed it. Carole was only trying to help and for the record, has been completely honorable during everything. You should be s ashamed of yourselves for attacking her.

This blog is still here and maybe we should continue to just post here since no one seems to know who started this blog so at least they won't get harassed or threatened.

No more bullying or threatening or harassing or stalking CDH parents. If Elizabeth and Stacy and any other BoH Board member doesn't want to end the drama or work with other CDH parents in a productive way - that's fine. But will the rest of us do to put an end to all this pain that is being caused to CDH families?

I think the first thing we need to do is show some support to Carole, Jennifer and Shanell - all of whom have received threats in the past week. ((((hugs))) to you 3 and I hope you know that you aren't alone, that not all groups behave like that and the actions of some should not be a reflection upon the whole CDH community.

Carole, I tried to e-mail you but got a note that your inbox is full.

Shanell Browand said...

You know what I think that we should do, is just delete this whole blog! Who agrees??

Julia's Mommy said...

I said I wasn't going to post here again but Shanell, Jennifer and Carole I just wanted to send you hugs. Shanell I never meant to attack you. I know exactly how you feel.

Dawn, I just wanted to say thank you for trying to work things out.

Those of you who are afraid to sign your name. I know where you are coming from and the fear of being deleted by BOH. BUT life goes on and those who were your friends will still be there for you in the end.

Here is my email for those who wish to contact me. I'm taking a break from support groups for a while. Heidi.Carlson20@comcast.net

Remember its all about our beautiful children born with a congenital diaphragmatic hernia and spreading awareness.

Southern Girl Rambles said...

Thanks!
Here is my email as well, jparker0803@yahoo.com, for those who don't have it and want it.

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

Taking a break from support groups is what they want to happen - create such drama, friction and accusations to turn people from CHERUBS, even if it turns people from BoH too. Don't let that happen to you, any of you.

I feel horrible that we didn't make all this public the first 3 years and maybe it would've save some of you. But this sliming around in the dark, attacking people in e-mails or on blogs and not publically take any responsibility for all the pain that has been caused. This is why I've been so adamant about letting people know what's going on, because this just keeps happening. If this can happen to former BoH Directors, people who were on the inside over there, supposedly Elizabeth and Stacy.'s friends. imagine what is happening to new and expectant parents. Well, Shanell is a good example.

That blog was a good idea, Jennifer and I mended fences. That was a good thing so thank you, Carole.

So what are we going to do? How can weed out the drama and have a peaceful, supportive CDH family again?

Shanell Browand said...

I wonder if there is anyway that Blogspot can just delete this blog, if that is what everyone agrees on. Oh, and Jennifer, sorry if I acted really rude to you. I know I shouldn't of. Its just Elizabeth has been bugging the crap out of me, like she has been everyone else!

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

Blogger won't delete anything, I contacted them when Elizabeth had her trashy slander blog up and they just don't care what people post. The only person who can delete this ting is whoever owns it.

I for one, don't think it should be deleted. This is the only place people can post to that's not affiliated with any either group. And I think removing people's posts or censoring them smacks too loudly of what BoH does. Besides, why hide what Elizabeth's doing to CDH families? It's hiding and sheltering her (not CDH families, but her) thahas allowed this to continue for 4 years.

I've said this on CPN and I'll say it again now... gossip and cruel behavior is like fungus, it flourishes in the dark and attacks anyone who questions it. Bring it out into the light, and it dies. How many more parents are going to get hurt by keeping it in the dark?

It's not "taking the high road" or protecting people when you keep the truth from them. It's setting them up to be attacked and hurt as well when you turn your head and watch them walk into a situation like that.

Support groups shouldn't send attacking e-mails or threaten or use the F word when talking to members.

Support groups shouldn't attack the parents they say that they are helping.

Support groups shouldn't raise money through memories of honor of children for something they aren't doing (research) and then use it to threaten people with lawsuits "now that they have the money to sue".

Support group leaders should care what's happening to their members and other CDH parents instead of a "if it's not happening to me, I don't care what's going on" attitude.

I don't think we should enable Elizabeth or hide this behavior, you can't deal with a bully like that. A bully is nothing more than a coward who takes advantage of other people during times when they can't stand up for themselves. Pretending this stuff isn't going on or hiding the fact that it is, is just as bad as watching a kid get beat up on the playground and cheering the bully on.

Seriously, we're all adults, why the heck are 100's of people letting one unstable person put so much fear into other people? If everyone stands up to her and says "no more" what the heck can she do? She can threaten all she wants but she has no grounds for a suit with any one. You can't be sued for telling the truth. If she keeps emailing you just put them in a folder, unread. Save them in case you need them, but don't read them. Or better yet, post them here - bring it out into the light. She quit e-mailing me when I started to post them for all the world to see. She inflicts fear into others because she is so terrified that everyone will see what she's doing and she'll lose the power she has over the parents at BoH. That's how bullies think. So why the heck are so many of you giving her that power? Don't you owe it to yourself and other parents and especially to your cherub's honor and memories to stand up to this?

I mean, we've survived CDH... what the heck are we letting her do this to all of us for? It's all mind games... because that's all she has.

Carole said...

Dawn,
Very well said.
~Carole

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

This will most likely be my last post on this blog as I have hit my personal limit in dealing with this drama......

I've had 2 requests this week to remove items on the timeline that we were previously ok to post - out of fear of what Elizabeth would do and because they didn't "want the drama". Yet still this week, I've had countless e-mails and a couple of phone calls from people complaining about she's doing but who are scared to post anything but who want CHERUBS to continue to try to stop her.

So this is my personal opinion here... CHERUBS has been here for 13 years, trying to help families dealing with CDH. We don't attack or stalk members, no one is afraid to say anything. We're the first and largest CDH organization and we provide dozens of services. Our board members have been with us for years, including the top CDH doctors and parents who have been in our membership for 12 or 13 years themselves. No mutinies, no attacks from other people or groups (until now), no motives other than to help CDH families. We work well with other organizations, including CDH groups. CHERUBS is a member of the Alliance of Congenital Diaphragmatic Hernia Organizations. Our reputation speaks for itself.

Then along comes one unstable woman who can't get along with others who is banned from CHERUBS and then starts her own organization with one purpose - and it's not to help CDH families. But there are many members there at BoH who are there to help CDH families. God bless them.

After 4 years of endless stalking, attacks, blatant slander, false accusations, and many attempts to try to get CHERUBS shut down, me arrested, run my business down, attack my personal life... not to mention the many, many, many CDH parents attacked as well... I'm fed up.

I'm fed up with Elizabeth's horrible behavior. I'm fed up with all the complaints from so many CDH families that she's attacked. I'm mostly fed up with people who will complain on e-mail or the phone about how she's attacking them or others but who will do nothing about it or who are too afraid to say anything publicly. Or worse - who stay at BoH and post, giving her a platform to continue this behavior. But at the same time, they want me to continue being a target while standing up for them and everyone else.

So here's the deal... if you're brave enough to go through CDH but not brave enough to stand up to Elizabeth's behavior publicly, alright, that's your choice and understandable in some situations. But you do have options... I am *NOT* telling you to do any of these things, I am simply saying that there are options.......

#1 You can walk away from BoH. Without BoH she has no way to hurt new parents. If you continue posting there, you're giving her a way to reach new parents and hurt them. You're not "keeping the peace", you're giving her new targets. An analogy..... You hang out at a city park often, one you love, one you have friends out - one you believe that is making the city a prettier place. But there are people at the park who are attacking / assaulting some of the visitors there. Some of your friends there. They tell you it's going on, there is proof it's going on. You complain about it. You write about it. You say the attacks have to stop. The park rangers are the ones doing the attacking though so who is there to report it to within the park? Why on earth would you keep hanging out there? Do you go and just turn a blind eye hoping you're not next? Do you ignore the screams of the people who are being attacked because you'd rather not be bothered by the noise? Do you invite more friends over there, knowing that at any moment you can get attacked, or they could or you could get thrown out of the park altogether? Here's an idea.... stay out of the park.

#2 Post here. On your blogs, other sites, anywhere. Take a stand. Call her out on her behavior, make her answer for what she's doing to so many families. Protect parents who have been hurt, support them. Protect new parents who haven't been hurt yet. Spread the truth, bring these horrible actions out into the light. Stop protecting someone who has hurt you and others... because that's who you are protecting - not yourself. She goes after people who have said nothing as well as those who have stood up against her. Stop being bullied. If she sends you a threatening e-mail post it here. Save it in case you need it. Forward it, whatever... just don't let this behavior continue to slime around in the dark. If any of her threats had any basis or any of what she said was true, why wouldn't she post it publicly? Because it's easier to bully without an audience. Because it's easier to lie when you're not lying where dozens or more know you are lying - instead threaten or force a lie down someone's throat privately until they cave and believe you or start to question themselves or become too afraid to question it at all - that's how bullies work. And once she thinks she can bully you, she'll keep it doing it over and over and over. We aren't kids - stand up to her.

#3 Don't be used. How many BoH members have posted here that they feel / are being used? Listen to them. CDH Awareness Day, turquoise ribbons... just arming her with ammo to use against other parents because now she's claiming these are official and owned by BoH because governors have signed papers. Papers you all got signed. Your intentions are so incredibly honorable and admirable but hers haven't been. Look at BoH's blog and cafepress site. It's all BoH has accomplished - what *you* all have accomplished. It's what she's even talked about in her legal threats to members or false accusations to agencies and sites - how BoH owns trademarks to all this, to *your* proclamations and Rainbow of Hope's ribbon and she's going to sue anyone who uses or says this without her permission.

#4 Keep writing for proclamations but stop using BoH's name in them, or any organization's name at all so that way *no one* owns CDH Awareness Day and it belongs to all. Worried about her coming after you with her trademark threats? Use "Congenital Diaphragmatic Hernia PUBLIC Awareness Day". It's not owned by anyone but was first said at CHERUBS and documented so she can't claim it.

#5 Stop doing the turquoise thing and using the turquoise ribbon... she's claimed that too - besides, that ribbon is used by other groups... don't take away from their efforts for their causes. She's threatened parents with lawsuits who have posted turquoise ribbons on their sites and blogs without giving her credit and linking to BoH. If you don't use it, she can't threaten. Use the cloud ribbons - owned by no one, voted on by many CDH parents not dictated to use by one person. You will never be [/code]threatened by using it, CHERUBS doesn't own it or want to own it. It belongs to all CDH families.

#6 Don't let her achieve her goal of dividing the CDH community and destroying CHERUBS. Don't quit all support groups because that is what she wanted. No, that's not an exaggeration, she's actually bragged about it to several people. As "L" on Carole's blog that was deleted posted (something to this effect, correct me if the wording is wrong, this isn't word for word) - "the only reason someone would start another CDH organization that offered the same services as CHERUBS would be to compete with CHERUBS and divide the CDH community instead of working together". Why would you put someone who can't get along with other people at the head of a *support* group?

#7 Join CHERUBS, work together as a group again. I'm not saying this to dissuade people from one group to join ours - I'm posting this because there *is* a place of support for CDH parents and because we had one huge CDH family until Elizabeth started all this and we can have that again. There is none of this drama on our site at all. There is nothing but support and one goal - to help CDH families. You can say how you feel, there is no censorship. You can leave any time you like and no one will stalk, harass or threaten you. Donations go where we say they are going, we would never, ever use donations to threaten anyone, sue anyone or file ownership of awareness. CHERUBS isn't about one person or one child. It was named for *ALL* children lost to CDH, our logo reflects that and survivors as well. Members are welcome to participate or conduct activities in honor / memory of their cherub or all all cherubs - we give you a venue to remember or honor your cherub and would never take advantage of that or chastise you for it. There are dozens of services and one that does not happen is catty, off-site gossip or drama. We don't attack other organizations or people... though we do stand up for ourselves. Our site, our forums, blogs, photo albums, lists and all of our services have one goal - to help all CDH parents and make sure that every family has the information and support that they need. And it is and always has been, free. We are lifting the ban on those 10 in the past who were banned for various reasons (10 in 13 years) and ALL CDH parents are welcome to join - except a few select individuals that our lawyer has advised us not to allow. That's not being rude in excluding them, that's just a legal precaution and keeping out drama. No talk of this drama on our forums. Just 100% support without fear. http://www.cdhsupport.org

#8 She has threatened many of you to turn you in to your employers, state agencies, etc... and in some cases (mine) she's followed through on these threats. I don't know of one instance where any of her righteous indignation had any truth to it and her threats had any real basis. Turn the tables on her. But do it with honor - Report only things that are TRUE that she has done to you personally or that you have personally witnessed her do to others (which if you include you all reading her slander blog - could be 100's of us who witnessed it). She has no problem filing false claims against anyone or threatening to do - let her know you're not taking that from her. Help put a stop to her behavior if she attacks you or you see her attack others. These threats are meant to try to intimidate and hurt people who don't agree with her. Well, turn them around on her - except with the truth. Rise above her behavior and report her for things she has done. I thought rising above it meant not reporting her or causing her harm like she's done to me and so many others... but in a way I let her bully me with my own kindness and pity towards her. No more. Let her lose sleep, worry, stress if she's going to lose her job (for real reasons... for consequences she bought upon herself with her own horrible actions towards others) or her home or her freedom. If she knocks it off maybe those places, agencies, etc will have stopped her and we can all be at peace and she can get a life and stop hurting others.... if she doesn't knock it off, let them deal with her. But showing her the kindness that she has failed to show anyone else is only making this is all worse. But *ONLY* report things that are **true**. This goes for Stacy as well and anyone else on the Board of BoH who has threatened you.

#9 If she's threatening you by e-mail while on her work computer (check the IP addresses on the e-mail) then turn her in to her employer. Contact info is on their site, you can forward the e-mails to her supervisor. www.praintl.com Call the Human Resources person for their Charlottesville, Virginia office. You can be anonymous. Just be honest - they can check their servers to see exactly what she's doing and typing while at work.

#10 If she's continuously threatening you or harassing, even through e-mail, contact the Albemarle County, Virgina District Attorney and ask to file a complaint. I don't believe this can be done anonymously as they will bring criminal stalking or other charges against her and you would be obligated to be a witness for the state. If she is doing this to you - do not let that intimidate you!!! U.S. Courthouse and Federal Building, 255 West Main Street, Room 130, Charlottesville, Virginia 22902. Telephone: (434) 293-4283. Fax: (434) 293-4910

#11 Contact the State of Virginia to file a complaint against Breath of Hope, Inc for unethical behavior towards members and other non-profit charities made by their president. You can complain anonymously. http://centralvirginia.bbb.org/WWWRoot/SitePage.aspx?site=85&id=9f8b3cb7-09b0-4a68-8a71-df1d5355f517 BoH's EIN number is on the BoH site - you will need this to file a complaint.

#12 You can make a 100% confidential complaint with the IRS for unethical behavior. http://www.irs.gov/charities/article/0,,id=139029,00.html Call them to reassure yourself that it's confidential first - make sure to check the box on the complaint that you fear for your safety or well-being if your name is given out and they will respect that. Complaint documents are here - http://www.irs.gov/irs/article/0,,id=178241,00.html You can fax, mail or e-mail complaints to them. BoH's EIN number is on the BoH site - you will need this to file a complaint.

#13 You can send us an affidavit to use in court. This is just a notarized piece of paper stating that you have seen or been the victim of her threatening, slanderous, harassing, or other illegal behavior. CHERUBS, 270 Coley Rd, Henderson, NC 27537 It will not be posted on the timeline, it will remain confidential until court. You don't have to worry about Elizabeth coming after you if you submit an affidavit - judges do not take kindly to parties threatening witnesses.

#14 You can forward us threatening and slanderous e-mails to post onto the timeline. We won't post them without your permission if they are between you and her. dawn_torrence@cherubs-cdh.org They must be forwarded and not copied and pasted so that we have the original IP stamping on them (otherwise we'll view it as gossip).

#15 You can file legal charges yourself for whatever she is doing to you or you can file for a restraining order. Feel free to use the timeline if needed. I have no problem being a witness / writing an affidavit for anyone who needs one (as long as I have indeed witnessed it).

#16 Track, document, keep records. If you have a blog or myspace or web page - add trackers. Know how much you are being stalked if she is stalking you. We have 7 different trackers that we use, plus the servers trackers on every single site and post for CHERUBS, my business or personal posts on the Internet. I know she was on google at 1:00 this morning, trying to find out if CHERUBS site had anything posted about a song. I know yesterday she was on craigslist.org trying to see if we posted anything. I know when she goes directly through her work or home computer or tries to go through other servers to hide herself. No, I don't know or care what she does on any sites other than ours. Spending this much time trying to see what CHERUBS and I are doing is stalking by any definition of the word. If she publicly attacks you, screenprint it (capture an electronic photo of the web site). If she e-mails you, save it. You don't have to read it if it will upset you, but don't delete it. Forward it immediately a friend as a back-up. And print it, put it in an envelope and mail it to yourself but don't open it - the USPS stamp on it is further proof of the date. If she calls you - record it - tell her you are recording it so it's admissible in court if you need it. If you keep getting calls where no one says anything (happened a lot with me in the beginning and has started again lately)... write down the date, time and then your lawyer can contact the phone company. Even if they try to hide behind a private listing, courts can find out where the calls came from. This is all documenting for court, building a case - stuff that lands on our laps on a daily basis almost through software or members forwarding or letting us know. I think it is the smart thing to do to protect yourself, whether you plan on going to court or not. Have proof of her instability and attacks on you if she is attacking or stalking you. Deleting and ignoring it is naive in this case. No one who does this stuff regrets taking the few extra minutes to do it - it's those who don't do it and need it who are the ones kicking themselves. The person who can best protect you is *YOU*.

There, that's a list of 16 things that you can do. Not things you should do or have to do - but things you *can* do. No one has to be victimized if you don't want to be. Every one has something they can do to stand up to her and get this behavior to stop and CDH parents be left alone. You don't have to say or post that you're doing any of them, but you do have choices. Do not allow yourself to be guilted or manipulated into thinking that standing up to her is an act against BoH, it's not. It's standing up for yourself against a person who is attacking you while she's using BoH to do it. Being told that standing up for yourself is hurting other CDH parents is just another form of bullying.

From this moment on, anyone who complains to me is going to get directed to this list. Period.

The one thing that you can't do and shouldn't do is turn a blind eye to what's going on and how CDH families are being treated. Do you know when evil flourishes? When too many good people say or do nothing.

Dawn

Julia's Mommy said...

Dawn the reason I have decided to take a break from support groups is because I do not want to open up myself to the kind of hurt Elizabeth put me through. I cried for two days about some of the horrible emails I received. I already suffer from anxiety and depression...I do not need to add any more stress to my life. I'm sorry if this upsets you. But please know that I will try to post occasionally at Cherubs. I just need time to heal.

Below is piece of an email from Elizabeth I received. I'm sharing it for everyone to see. It shows how much she actually cares for her BOH members and her threat to sue me:

"And if someone want to leave - they can leave - I am not stopping them. That is just so insane. In fact - tell these people to go ahead and leave - that is fine. I would rather them NOT on the Listserv with BoH then living in fear.

And by the way - I could - but will not - include you in the suit - it is called defamation of character and civil slander - and you have participated in that by your Carepage posts and your public posting of all this information.

Please just leave the Survivor Listserv, tell your friends they can leave BoH and there is no wrath."

I can forward the emails but if you want them you should know Elizabeth put email trackers on them.

Heidi

Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...
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L said...

Just checking in. Seems to be quiet. Guess Elizabeth isn't threatening anyone!

CHERUBS - The Association of Congenital Diaphragamtic Hernia Research, Awareness and Support said...
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Shanell Browand said...

hmmmm. so about this patition. I know who did this and I think we all know. We need this to stop. This " person " hasn't gotten away with anything yet, and she will never get away with anything. Everyone!!! Sign the patition!!!! And Elizabeth, Just give up!!! You are not going to win this, You are not going to own " Congenital Diaphragmatic Hernia Awareness". I know its you, we all do, so dont hide!

H said...
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Carole said...

H - Can you contact me directly please? I know we had a conversation many months ago...and there are some things I need to apologize for.
~Carole
thegoddessg at hotmail.com

Heidi said...
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Heidi said...
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Heidi said...
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Dawn at CHERUBS said...

Heidi, I am totally confused. You posted this because Elizabeth is threatening you again?

Don't stress over her threats, really. You can't be turned in to the police for having an opinion and posting a comment. Same with comcast.

Threatening CDH parents is *not* supporting them! As far as BOH's Board's education.... really? I'm sure the entire CDH community would love to hear all of their credentials in dealing with CDH and what makes Breath of Hope "experts" enough to control all awareness and research. How much hands on experience does each of your board have in dealing with a CDH baby? Surgeries? Recurrent herniations? Long term pulmonary issues? Feeding issues? Therapies? ECMO? Research? Non-Profit leadership experience (not being a secretary at Red Cross or a cemetery and claiming to have experience). Education.... do any hold medical degrees? Because an associates degree in business at age 40 is wonderful (congratulations) but it does not make one "educated" enough to lead the entire world's CDH research.

So please, tell us all what makes Elizabeth Doyle-Propst so much better than all the rest of the CDH world and all the researchers who have gone to medical school and dedicated 20 or 30 years to CDH and the parents who actually live through the day-to-day CDH issues and didn't read about them in a book or visit someone else in a feeding clinic. Because as far as I can see... THEY are more "educated", have more "experience" and are the "experts". A few proclamations do *not* make you an expert - they make you an opportunist, using new and newly grieving parents to collect pieces of paper to say you've raised Awareness. But how many people do those proclamations actually help or educate? Ask any of those governors if they know what CDH is even though they signed the paper... I doubt even 1 has a clue. 100's of pieces of paper pass over their desks every day. The other 8 organizations could start our own day and name it something different and get proclamations too... but would we use them to try to control the entire CDH community or trademark awareness? Absolutely not. We're here to help CDH families, not win popularity contests or control people to boost our own self-esteem or to use our children's illnesses or deaths as an excuse to make our own lives worthwhile or have meaning. Support groups and charities are not supposed to be about the person running them but about the people they say they are trying to help. Is Breath of Hope about Elizabeth or is it about CDH parents?

Breath of Hope has been around for just a few years, does no research, donates how little to research organizations - but expects CHERUBS, who does do research and has been around for 14 years and has actually doctors on our board and parents with years and years of experience in everything to do with CDH... to report to Breath of Hope and ask permission to raise awareness? And the same with Kays Kids or Boston's Children's CDH Clinic? Do you not see how absurd this is? Do you not understand that the entire CDH community of parents and researchers are rolling their eyes and are *disgusted* with this?

Elizabeth posted she wasn't going to "police" the trademark - but has filed many complaints with businesses and organizations already against people who used the term "Congenital Diaphragmatic Hernia Awareness" without her permission. She reported CHERUBS to zazzle.com to try to have our skateboard design fundraiser shut down. Kids drawings on skateboards are a threat to CDH Awareness? How, especially considering the artists are CDH survivors??? Not policing the trademark, huh? And now posting that people had to ask permission and sign paperwork to use the term? That's not policing? It is policing and it is lying.

And FYI, except for maybe The Parker Reese Foundation now working with you, none of the rest of the CDH community is going to kiss any tushy to ask your permission to raise awareness or research for a birth defect that we have more experience with than you do. You can threaten all the CDH families you want - just prove our point - but all you are doing is more harm than good. I wish you could see this.

And if you, Elizabeth, and the rest of the Breath of Hope, Inc. - can you please be PROFESSIONAL and ETHICAL and CARE about CDH families enough to stop this juvenile behavior and put them first? How much more proof do you need that no one but Elizabeth wants this trademark and there is no MORAL reason to have it! "Pinkwashing"? That's the flimsiest excuse yet to this crazy behavior. And BTW, Down's Syndrome occurs in 1 in 900 babies - almost 3 times more common that CDH - you can't compare the two. And you definitely can't compare CDH (1 in 2500) to Breast Cancer (1 in 9). Do you really believe there will 1000's of companies fighting over turquoise and "stealing" money you think should go to BoH by selling items with a ribbon on them? Of all the 1000's of diseases and birth defects they are going to choose CDH to the point you have to "restrict" everyone? Really? I mean, really? You have a better chance at winning the VA Lottery than that happening. How about coming up with an awareness idea that no one else is doing and try to make something special out of that? I mean other than registering the only trademark in the country for awareness of a health issue and trying to profit off of sick babies. That's a first you probably shouldn't brag about. But at least it's original.

As a board, you are supposed to do what's right for your members - not stroke your President's ego or be gullible. We all know that this trademark is not about "pinkwashing".... how much more proof do you need? There are e-mails, posts, petitions, court documents. Proof - not excuses - proof. "You can lead them to water but you can't make them drink"... you are leading parents to toxic sludge, not water. You may be doing some good at Breath of Hope but don't you see it's being clouded over with all the bad that you are doing as well? Don't ALL of our children deserve better? Listen to your hearts and consciences and think about what is right here - for all CDH parents. Isn't better to say "Sorry everyone, we were wrong - this trademark wasn't such a good idea. We will stop it and give back awareness to the families and researchers" - and move on! Show a little class and concern for the CDH families you claim you are protecting.... instead of being who they need protection from.

This post isn't meant to attack Elizabeth or Breath of Hope or anyone else.... it's posted to ask Breath of Hope's Board to do the right thing. Sorry, I'm not the type of person to sugar-coat things or manipulate the truth.... I say things how they are and how I see them and if that offends anyone, I am sorry but I truly do not mean to offend.

BoH's Board.... We've been asking them to stop Elizabeth's irrational and unstable behavior for 4 years... look where it's lead. Will you please stop her now? Why can't BoH just help families without all the threats, the trademark, the false allegations thrown at other groups and parents, the false complaints filed all over the place? Why? No one files complaints against Breath of Hope. No one personally attacks Elizabeth or any Board Members of BoH. No one threatens any of you. What has been done to Breath of Hope that makes them the "victim" Elizabeth keeps claiming to be? Nothing at all - but people are talking about the truth, things she's doing, attacks she's made. Talking when she wants everyone to hush and deal with her attacks in silence. There is *nothing* wrong for standing up against something that is wrong. There is nothing wrong with allowing parents to have opinions and to post them without censorship or deleting 1000's of archives to cover up the truth. The truth has proof. Lies have excuses, ill reasoning, and attacks on others to try to cover them up.

How much more proof do you need? How many more people will you let her hurt?

For everyone else reading this insanity - please stand up for what's right here. Petition, proof, full explanation of what's going on is here -

http://www.ipetitions.com/petition/cdhawareness

Feel free to post it, e-mail it, forward it, etc. Our babies are not commodities, their struggles and lives are not something that should be fought over or controlled. Congenital Diaphragmatic Hernia Awareness should belong to everyone.

Heidi said...
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Heidi said...
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CHERUBS CDH Non-Profit said...

Here's another comment....

Audio of Elizabeth Doyle-Propst committing perjury multiple times and the truth about what the judge said in the restraining order against her. Slandering a charity and calling the President a liar while she does things like this:

http://www.facebook.com/video/video.php?v=411705882892&ref=mf

This is part of the court audio. The full 3 hours or so court audio can be found at http://myfreefilehosting.com/f/e5bec80b07_23.23MB

This has continued for 6 YEARS!!!! If someone will lie under oath after putting their hand on a Bible... what will they not lie about? 6 years of slander and lies and attacking.

And those who defend this behavior and also slander our charity and call us liars have morals and priorities just as low.

http://www.cdhsupport.org/elizabeth/index.html

If threatening our board continues, we'll gladly update the timeline so everyone is well aware of the truth and proof.

It's a shame just doing the right thing and focusing on the babies isn't enough to make people grow up and stop harassing others.

CHERUBS CDH Non-Profit said...

Why comment now? Because Elizabeth is threatening our board members with lawsuits if this blog isn't removed immediately.

Nevermind none of us own it and so none of us can remove it.

Heidi said...
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CHERUBS CDH Non-Profit said...

Heidi, you are lying. Everything you just posted is completely false. Allegations without proof (because they aren't true) are slanderous and libelous. I'm working 12 hour days and running an international charity and I have a family. I have neither the time, desire or immaturity to e-mail anyone anything about your drama, much less 100 times.

This entire blog was started around the time Elizabeth was harassing YOU. Perhaps you started it and now that you and Elizabeth are BFF's you are putting the blame on Kara?

We will not respond to you again. There's no point in any conversation. Facts speak for themselves while drama seekers just throw out insults and false accusations. I won't be party to it.

Focus on the babies. Do something positive with your time.

Heidi said...
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Heidi said...
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CHERUBS CDH Non-Profit said...

There is a stack of court-documented proof of what is true.

There is a long, long of list of our accomplishments.

There is not ounce of proof that anyone has done anything to hurt BOH or Elizabeth.

There is a 6 inch stack of proof of the attacks on CHERUBS and myself. Court documented.

Everything you keep posting is a lie. If you believe all the stuff Elizabeth is saying... make her prove it. Where is the evidence?

This is slander. You aren't above the law, Heidi.

CHERUBS CDH Non-Profit said...

I am truly done with this conversation. Anyone who participates in all this drama and attacking other CDH moms based on gossip and slander... not anyone I care to talk to. The proof and evidence is before your eyes and ears... if you still believe all the trash you're being fed and believe it to the point that you will attack a charity and others... well, you're being used.

All this slander is being sent to our lawyer.

Conversation over.

Heidi said...
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H said...
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CHERUBS CDH Non-Profit said...

Wow, can't say I saw that one coming at all.

H / Heidi / Elizabeth... whomever is sharing the brain tonight... just stop all this nonsense.

Tara said...

Heidi, that was totally uncalled for! If you wanted this left alone you should have never posted. You talk about Dawn being crazy but who is the one calling names to people who have done nothing to you (puppets)? I do not believe Dawn has done any name calling, yet the people who seem to THINK that they know everything are the ones who get the most angry and start the ugliness. I feel that you can say what needs said with out the nastiness but then again, you (general term here) tend to behave in a manner that you are familiar with/follow so to speak...

Heidi said...
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Heidi said...
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Tara said...

I also take offense to "cult members"! Truly Heidi, do you know me or anything about me? I am a board member of CHERUBS so I would be one of those you would be referring to and I will say I have never done anything to you or said anything negative to you. I am sure you have heard the saying "Do not criticize or slander another if you are vulnerable to retaliation. Cf. [c 1385 Chaucer Troilus & Criseyde ii. 867] Who that hath an hed of verre [glass], Fro cast of stones war hym in the werre!" In other words, those who live in glass houses should not throw stones. I do not appreciate your negativity towards me, have not asked for nor deserve it because you dislike someone else.

CHERUBS CDH Non-Profit said...

Oh Heidi, wow. It's hard to be angry at you when it's all just sad that you believe whatever you're told without any truth or proof and it's obvious E is feeding you word for word. The fact that she is hiding behind you and still spewing venom is lies is sad. Even sadder that you're allowing it.

FYI, Elizabeth sent an e-mail this past weekend to a Board Member threatening to sue her if she didn't take down this blog and threatening her if she forwarded it or told anyone about it.

So who won't leave who alone?

And FYI... never in a million years do I want to be you. Sorry. And the legal name is CHERUBS in CAPITALS so no, I'm not the only one who types it that way. Don't blame me if you get caught switching between multiple personalities. And you keep deleting every other post. #1. You make no sense (as usual lately). #2. Keep me out of it. #3. When I started CHERUBS there was no internet so the comments about attention are ridiculous. #4. You have never met me, don't know me, have never even had a phone conversation with me. And you're 100% wrong about everything.

Look, you can keep attacking and posting lies and nonsense but if you stop for a minute and look around... you're only damaging BOH. CHERUBS is flourishing and doing many great things. Our membership is growing, our donations are increasing, we're doing some truly, truly amazing things..... 3 Congressional sponsors for our $50,000,000 - yes, MILLION - CDH Research Bill in 1 month. Save the Cherubs with billboards, tv interviews and front page newspaper articles. Our FB fan page has over 3000 members and growing, our Cause page has over 11,000 and growing. We are attending medical conferences and working on grants with researchers. Our database is recognized world-wide. Our conferences are successful and built around helping families. We have a celebrity spokesperson. We have amazing events and fundraisers. We're #2 nationally in the APX contest. We proclaimed cherubs as the official international symbol for CDH and it has been for 15 years. We've written books, sites, all our own graphics, a huge e-store, a song on iTunes, videos and so much, much more. And all of it original.

And we didn't hurt anyone, attack anyone, steal anything, copy anyone or trademark anything to achieve it. All of it built on nothing but positively and helping CDH families.

And along the way we stopped the trademark on CDH awareness without using a single penny of our donations.

And guess what? *I* didn't do it. I don't claim success for it. It's all a group achievement.

So how are we jealous and competing? Why and over what?

As we've said and asked for 6 years... we only want to be left alone. Stop the threats, the lies, the attacks. Focus on CDH.

Heidi said...
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Heidi said...
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Heidi said...
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CHERUBS CDH Non-Profit said...

And... we've sent out totebags to over 150 CDH families, sent over 100 CDH families to Mass General, have the Adopt A Hospital project, work with all the genetic study researchers, the CDH Study Group, our research will be published next year and co-authored with a surgeon, our Angel Ball has a 3-time Grammy winner attending, we had over 900 new members last year alone, we helped Real Hope for CDH almost win in the Chase contest, we had 8 CDH groups at our conference last year, we have a medical advisory committee, our data is accurate, our drama-free and safe and confidential forums have over 60,000 posts in just 3 years. Our volunteers are incredible and they volunteer for only 1 reason - to help CDH families. And these are only the ones we've posted so far. There is so much more going on behind the scenes.

And yes I'm bragging on our charity. Because we've done a lot to be proud of. Together.

So you see... we don't have time for drama. We're busy.

Perhaps if you ladies were more focused on helping CDH families instead of attacking them, you'd accomplish a lot more too.

Darlene said...

"Munchausen Syndrome"- wow, that's a powerful accusation. I hope whoever is hurling these accusations can back them up. If anyone is NUTS here, it's me for reading crap like this.

Heidi said...
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Darlene said...

Ok, I am sorry. I sit corrected. I could have sworn the beginning of that post said "The Attention-Seeker(Dawn)" so it would naturally follow that the "symptoms" referred to her. Sorry, for the misunderstanding. Also, since you brought up "Munchausen Syndrome", I think you are the one who should share.

CHERUBS CDH Non-Profit said...

Heidi, do you even know what Munchausen Syndrome is???!?!??!!!

It is a mental illness of a parent who purposely makes their child sick so that they can get attention.

So you are publicly posting an accusation that physically abused my son. My CDH son who had so many medical issues that he died.

How sick are YOU?!?!??!!!! Are there no limits to your attacks and nastiness?

CHERUBS CDH Non-Profit said...

Your whole "list of symptoms" are accusations. Who says things like that????!!!!!!

Who has said one nasty thing about you? Anywhere? And yet, you continuously post the most vile, disgusting, hateful accusations that are so untrue and hurtful.

And then if anyone points out to you how horrible and untrue they are, you say I'm "playing the victim". Or if anyone calls you out on your nasty words, it's "twisting it around".

No, it's pretty clear who is writing horrible things and who is correcting you and asking you to stop.

Now I am going to say something... and it may sound mean but it's a sincere question..... What is wrong with you? Seriously? Are you so lonely and in such need of friends that you would stoop this low to earn Elizabeth's respect? To attack other CDH moms and now their children? Join a club, join a church, find some NICE women to hang out with. Stop hurting other CDH moms and disrespecting our cherubs.

Tara said...

I don't do drugs Heidi but thank you for asking about my well being. The only dirty work I do is my own, changing dirty diapers on a daily basis. I work for myself, no one else Heidi. I am a board member for CHERUBS so I was lumped into your cult comment by that fact alone. No you didn't name me personally but what's the difference. I don't have time for all of this but I will not sit by and let you call names like this and then post that Dawn is causing all the drama. Really?? What happened to make you so angry? You sit there and say all kinds of things to Dawn and yet she still responds with RESPECT and you come back with name calling.

And "That video is a lie. Take it down! Elizabeth didn't lie she forgot she did those things. It's an honest mistake to forget you do things. Even if she did lie it was to protect herself from you!" She didn't lie and if she did lie... well which is it? A lie is a lie, I doubt she forgot she did those things but remembers what Dawn does on a min by min basis. I think you should pull your head out of the clouds and take a good look at what you have been told, LISTEN to the court proceedings, make decisions for yourself. Look at what has happened to all those who have gone against BOH, they have been threatened with slander, libel, what have you. Open your eyes, see for yourself.

And are you speaking to me about threatening to sue you? Where on earth did I do that? WOW! I know you are referring to the quote about those who live in glass houses but how on earth you came up with me threatening to sue you out of that? Again I don't threaten Heidi. If you did something that demanded my time and effort that much, hats off to you.

Again you THINK you know everything if you are assuming that I am the one who posted anonymously. Um no. Believe me I have no problem putting my name to what I post. If you knew me that would be a fact you would know. I have nothing to hide from you. I don't threaten, I don't call people nasty names, I back my friends up when they have been wronged

Tara said...

This Munchausen is over the top! How one parent of a child with a birth defect could ever say something like that is beyond me. Have you ever met Dawn? Did you ever meet her son Shane? I HAVE! I have even met Elizabeth and her family. How can you sit there and type this stuff about someone you don't even know? I am just amazed at how angry you got over what??

Tara said...

This Munchausen is over the top! How one parent of a child with a birth defect could ever say something like that is beyond me. Have you ever met Dawn? Did you ever meet her son Shane? I HAVE! I have even met Elizabeth and her family. How can you sit there and type this stuff about someone you don't even know? I am just amazed at how angry you got over what??

kmmyers said...

I am only saying this once, for once and for all, I (me myself the only one) was the one who voted for all CDH organizations in the Chase contest and left a comment about voting without having to agree with the leadership of the organization. At this time is when ALL the attacks RESUMED on CHERUBS, CHERUB members as well as personal attacks to me by Elizabeth. DAWN had NOTHING to do with my voting or comments. The attacks on her and CHERUBS is uncalled for. Stop this nonsense!

Heidi said...
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Darlene said...

Ok, either I am suffering from heat stroke or there are 2 NUT blogs, but I don't see where kmmeyers said anything about contacting Chase and having BOH removed.
Darlene

Tara said...

You posted it in response to me on your facebook (baby killers). Need I copy and paste it to refresh your memory? One thing I have learned CYA (cover your ass), I still have the posts despite you deleting them so if your "forgot" that you said that I would be more than happy to provide the truth for you. And please do not belittle me by thinking I am stupid enough to go along with the whole I am leaving Dawn alone when just last week you were bashing her left and right and when I asked you to prove when she called you a baby killer you deleted me and the entire post.

Heidi said...
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CHERUBS CDH Non-Profit said...

Heidi, what are you smoking? You post so much lies and trash that DOZENS of people forward it to me and you lose how many FB friends because they see how dishonest you are? Then you post such horrible stuff here and delete it. You attack a board member and accuse her of starting this blog when you probably did yourself and you've had how many different multiple personalities posting here? Heidi, Julia's Mommy, H and who else? Then you try to get CHERUBS kicked out of the contest (yes, we have proof). And now because you delete it and post that you're taking the highroad it supposed to erase from the minds of 100's that all the things you did didn't happen? Rewrite history and play innocent? You are indeed playing out of E's handbook. Congratulations, you've hit a new low. If you're going to do all this stuff at least be honest enough and woman enough to admit it instead of lying and doing damage control to your own reputation instead of caring one bit about the CDH community (because if you did, you wouldn't have done all this and started quit a bit of the drama in the last 2 weeks). The fact that you can say your conscience is clear is very, very disturbing. Unbelievable. Leave CHERUBS and myself alone and grow up and use all this energy to do something good... or just do SOMETHING for the CDH community (volunteer, help others, donate, anything!) to actually help CDH parents instead of tearing them down and tearing down people who do volunteer and give back and help others.

CHERUBS CDH Non-Profit said...

Perfect example of the insanity we deal with and the dishonesty and cowardess of people who post under aliases and multiple personalities and say horrible things under their own names but then delete them to protect their own reputations. Hurt other CDH moms... but heaven forbid anyone actually know what they doing. If you'd stop doing horrible stuff you wouldn't have to be so concerned about deleting it, hiding it, calling people who see and know it liars, proclaiming court evidence false, hiding posts and blogs, etc. Honest people have nothing to hide.

Heidi's deleted post...

---------------------

Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

So Kymmers you're admitting to contacting Chase and having BOH removed?

Dawn I don't know why you are mentioning my name but I have not said anything to you about baby killers. My life has been so quiet since I blocked you. Now I am hearing you are writing stuff about me. Please just leave me alone like I am you. I have no idea about any of the crap you are spewing. Again please just leave me alone.

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 10:39 AM

Tara said...

Why do you keep deleting your posts? You claim to be so "drama free" but yet you were mud slinging last week. I'm sorry but I have a real problem with the whole lets all get along and then backstabbing. You told me yourself that you have no problem calling people names to their faces when you are angry but now you are doing the whole it is all Dawn and Elizabeth dragging it out. Bull! This continues because there are those that are going behind the scenes threatening other parents, calling APX to have CHERUBS removed from the contest, and many other things that are totally ridiculous. Please stop being hypocritical and just do the right thing. If that is staying out of it then do so, but don't act like you have no idea what we are talking about and try to be mediator. Dawn has long ago tried to end this, what about Elizabeth?

kmmyers said...

Dear Heidi,

If you read my post correctly then you would know that I VOTED FOR not removed anyone from any contest. Please do not misconstrue my words to fit your purpose or lay blame.

Heidi said...
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Heidi said...
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CHERUBS CDH Non-Profit said...

So mature. Since that's where you talk from obviously... I guess toilet paper is pretty precious to you.

Our lawyers invited Elizabeth and her lawyer to mediate and solve everything and move forward. Once we said both parties should bring video cameras so the truth couldn't be twisted (which you all do), she said no. Add in the dozens of blog posts and e-mails to move forward. What has BOH done at all to move forward? Carry on the trademark suit for 2 years on donation money after 6500 people asked her to stop? That was just months ago.

It seems the "CDH summit" was less about "people who can't get along trying to resolve issues" (look up the definition of summit) and more about spewing venom and negativity since that's all you all have seemed to do since you returned from it. FYI - NONE of that happens at CHERUBS. Not at our events, not on our site or forums. Our focus is helping CDH families, period.

Not worth my time to respond any farther. You obviously aren't interested in what's best for the whole CDH community, what's right, what's honest or what's respectful to our children. You are a shining example of the negativity brought forth on our community by a few nasty women who are more concerned with drama than these children. All your rants and raving and lies in the past 2 weeks have done nothing to hurt the good people at CHERUBS - they have just shown your true colors, Elizabeth's actions and all the negativity and nastiness and dishonesty propagated at BOH and those who associate with it to attack other CDH charities and families.

Heidi said...
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CHERUBS CDH Non-Profit said...

Oh Heidi, please get some help.

Tara said...

You keep bringing up the 100% drama free. I don't know that Dawn has said that SHE is drama free just that CHERUBS is drama free. Big difference. Why do those of you that hate CHERUBS so much just not bother with us? If CHERUBS is so bad and not worth the drama then leave us be! I only started posting on this because you (Heidi) started name calling and I thought that was totally uncalled for (but then you deleted your posts), and then you suggested I was high. I just don't understand how you do something (name calling, mud slinging, whatever) and then say you didn't do it or say you don't know what we are talking about. Man up. If you have the balls to say it then don't turn tail and try to hide like you got in trouble. Better yet be an adult and treat people with respect!

Heidi said...
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Heidi said...
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Tara said...

http://cdhsupport.org/elizabeth/index.html That is not drama that is called PROOF! I don't know why I bother responding to you, you keep deleting. Yes I do have your responses by the way, as you said the other day we get the emails so I don't know why you waste the time either posting or deleting. Would you like be to repost for you? I would be happy to.

CHERUBS CDH Non-Profit said...

I guess if anyone responds, they need to quote Heidi since she'd rather be dishonest than mature.

Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

And so people you can see for yourself that Dawn likes to continue in the drama. She saves everything everyone writes for "her lawyers". Hmmmm...don't you guys have a listserv called Can't Play Nice with Others???? From what I recall seeing it was listed on the membership list for ACDHO. Accuse me of anything you want if it makes you feel better. I have you blocked Dawn and haven't said anything in several days.

I have had several people contact me about ending this drama with an unbiased mediator. Now they can see for themselves why I said you'd never do it Dawn.

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 3:52 PM


Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

Thank you for that message from your Cherubs president! The 100% DRAMA free person who has crap pasted all over her Facebook wall! The only person I see pulling people into this drama is Dawn. Read her posts! Dawn loves the attention she is getting!! She practically glows in the responses you people are giving her!

Dawn read my words when I say UNBIASED it means NO LAWYERS!!

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 4:36 PM

Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

Sorry can you repost that I was busy drinking my turquoise kool-aid.

Please do your magic tricks and make my deleted posts come back!

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 5:22 PM

Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

No Cherubs Drama you say? This isn't drama? Please explain.

http://cdhsupport.org/elizabeth/index.html

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 5:26 PM

----------------------------

Yes, the timeline is up. Not linked anywhere on CHERUBS support site. No one posts about drama on our forums. There is no attacking anyone. The timeline is up to post the truth. You can rant and rave and taunt all you want but it's staying up so that everyone can see the truth vs the lies and venom you and Elizabeth and Jessica and the others post. And it's ALL court evidence. At CHERUBS we tell the truth. As evidenced in the multiple commits of perjury in the court audio, it's obvious that some people have no problem lying (even under oath). You defend that while lying yourself on here many times. If calling out the truth to defend our charity from your lies is labeled as "drama" so be it.

Done with this conversation and I'm asking everyone else to stop responding too. It's obvious you're just instigating. And it's blatantly obvious that you're dishonest.

Heidi said...
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Tara said...

What is wrong with you Heidi? You said to "magically" post your deleted posts and she did. Wasn't magic we get the emails. Why are you being so sarcastic and nasty? Going to ask a question here, what exactly do you want? What is your goal in doing this?

Heidi said...
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CHERUBS CDH Non-Profit said...

Heidi has left a new comment on the post "Board Members Of Breathe of Hope":

In all seriousness...

I treasure every moment I have with my beautiful daughter Julia. Julia was born with CDH and was not supposed to survive. She is our entire world! To have people who proclaim to be pioneers in CDH support violate her name in their petty nonsense makes me want to puke!! Julia is the most precious thing ever to us and to prevent any parent from having to face what we did is our greatest hope! To do this we have entered Julia into 2 research studies!! I don't need to vote for some self promoting group to help CDH research. Not voting is my right. It does not make me a bad person!!

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Posted by Heidi to Elizabeth Doyle-Propst Is Nuts at July 20, 2010 6:30 PM

---------------------------

What are you talking about, Heidi????

NO ONE has said one bad word about your daughter, nor would we!

And honestly, no one cares what you vote for personally.

Delete your nasty posts full of lies and hatred and then post something like this to try to make yourself look like a victim of something that isn't happening. And bringing your own child into it. Unbelievable.

Literally UNBELIEVABLE. No one believes you anymore. Stop harassing people and leave us all alone. Go find something honest, constructive and positive to do with your time.

Tara said...

Why does she keep deleting her posts? She knows we will post it. Talk about wanting to fuel the drama.. really!

Heidi said...

A CDH Mom's Status July 21st

Today is a rough day, I'm thinking about Kaden a lot. I just have a ton of emotional stuff going on right now and I'm just ready to break down in tears, aghhh! Praying for peace and untiy in the CDH community, I know it's what God and all our angels & earthly angels would want. I dont get why it's so hard to swallow your pride & ignore things for the greater good, shit I do it every damn day, I'm married LMAO!!

CHERUBS CDH Non-Profit said...
This comment has been removed by the author.
Dawn said...
This comment has been removed by the author.
Dawn said...

Deleting all your nasty posts and then trying to betray yourself as some quiet, kind mom whose only concern is the whole community might have been successful if 100's of people haven't witnessed your insanity!!!!

If you cared anything about other CDH families (than your own) you wouldn't be doing all you've done the past few weeks.

I just watched 2 amazing parents say good-bye today to their cherub today. Something they shouldn't have had to do if there were enough funds for CDH research!!!! Something YOU keep trying to prevent with your drama.

Your drama and selfishness is sickening.

I think I can speak on behalf of most of the CDH community when I say...

HEIDI, SHUT THE HELL UP!!!!!!!

Heidi said...

All I can say is you...you alone posted on this blog on July 13 Dawn. YOU STARTED THIS DRAMA! You expect us CDH parents to sit back and listen to your bullshit and not talk out. I guess you underestimated me because I am sick of you and all the drama and hurt YOU cause to CDH families!!!

Dawn sit on your throne and continue to blame others for the drama that is a direct consequence of your actions almost 8 years ago. Most of us want to move past this. But you hide behind your lawyers and are afraid to come out.

Elizabeth has admitted she has made mistakes and is not perfect. Does Elizabeth post timelines? Does she speak out in public?? No sweetie she doesn't...thats all you!!

If people want to know where I spent my almost a year in 2006/07 they can go to www.carepages.com password: JuliaGraceCarlson
I knew nothing of this bullshit just like these new CDH Moms until I was dragged into it!

So on behalf of all of us CDH Moms

DAWN GROW THE HELL UP AND STFU!


All we want is One Voice For CDH

Tara said...

No Elizabeth goes behind the scenes and threatens everyone with some sort of lawsuit. How many people have said on here how they are afraid of her? On April 8, 2008 you posted how Elizabeth emailed you yourself and talked of including you in a defamation of character and slander suit but here you are just shouting what a wonderful person she is.

And what are you talking about from 8 yrs ago? Please share. As you have pointed out (but deleted) you have only been around for four yrs so you wouldn't know what has been going on.

Heidi said...

Tara I learned that there are 2 sides to every story. I talked to Elizabeth and we agreed to move on for the sake of CDH Awareness.

Generally, forgiveness is a decision to let go of resentment and thoughts of revenge. The act that hurt or offended you may always remain a part of your life, but forgiveness can lessen its grip on you and help you focus on other, positive parts of your life. Forgiveness can even lead to feelings of understanding, empathy and compassion for the one who hurt you.

Forgiveness doesn't mean that you deny the other person's responsibility for hurting you, and it doesn't minimize or justify the wrong. You can forgive the person without excusing the act. Forgiveness brings a kind of peace that helps you go on with life. (Mayoclinic.com)


I am going to ask my Father for forgiveness for my part in all this drama and remove myself from it. I will pray that this all comes to an end.

“Lord Jesus, I confess that I have sinned against You, others and myself. I call upon You, Jesus, and ask You to forgive me from all sin. Especially in the realms of unforgiveness, any word curses against myself or anyone, rebellion and/or strife. I apply the blood of Jesus over myself. In 1 John 1:9 You say, “If we confess our sins, He is faithful and just to forgive us our sins and to cleanse us from all unrighteousness.” So I thank you Jesus that I am forgiven! Lord I also ask that you give me the strength not to return to this hateful blog. In Jesus's name Amen

Darlene said...

Great! Does this mean you are going to reinstate all the sinners you deleted from your Facebook friends?

Tara said...

I'm posting here even though you said you will not return because I know you will be fwd the response. I commend you for trying to get past all this and for admitting your wrong doing. I am saddened that you choose to believe the lies but that is your choice and I will leave it at that. Believe me I know all about forgiveness. If you want to read more there is a site called divorcecare.org (don't need to be going thru a divorce) where you can get daily emails. It deals with everything from anger, forgiveness, financial impacts, wonderful insights. Those that are going thru a divorce, have been thru one, check your local church to see if they have a class going on (can check at the website). I went thru one and it was amazing. It is Christian based. Here is an excerpt: If you are struggling to repent of your hurtful words and spiteful actions, perhaps you, too, still have anger that needs to be released and not harbored. Continue to find ways to express your anger in a productive, healthy way. Then, confess any out-of-control anger to God, to the person it was directed against, and to yourself.

"Therefore confess your sins to each other and pray for each other so that you may be healed" (James 5:16).

"Blessed is he whose transgressions are forgiven, whose sins are covered" (Psalm 32:1).

Faithful Lord, forgive me for letting anger take control again. Forgive me for holding on to anger when I should be releasing it. Help me to forgive myself. Amen

Tara said...

Something I forgot to add, just because you can ask for forgiveness does not make it ok to do the wrong doings. As Christians we are expected to behave in a Christlike manner and walk in the way that leads to Christ. So I am not going to sit here and call people names, go out and do things that are unbecoming just because I know Christ will forgive me. I try to lead my life in a way that teaches my child how to teach others with respect, the Golden rule, etc. At least that is how I do things in my house. I am not saying I am perfect but I am raising a teenager and that is hard enough, I want him to see how to treat others by example. Believe me we have had many conversations about forgiveness with this divorce thing and I want him to understand that just because God will forgive you it doesn't make it right to do it. It is not ok for your husband to cheat on you because he will be forgiven, it is not ok to committ murder because you confess your sins, it is not ok to treat others poorly because you can ask for forgiveness. If you walk in the Light you have far less to be forgiven for and can spend your prayer time be thankful. Just my nickles worth

Dawn said...

Amen, Tara.

If you're going to preach the Bible, live by the Bible.

Forgiveness is something God gives to those who are truly repentant. God knows our hearts. He know when our actions are meant to be good or meant to hurt others. You can post all the fluff you want and you may fool a few. But God knows all. Use the Bible to save your soul - not your reputation.

Doing the devil's work while quoting God's word is blasphemy.

I will pray for you, Heidi.